For Abstractors. By Abstractors. Better Data. Better Care.
Registries
Cardiovascular Registries
The CathPCI Registry evaluates the characteristics, treatments, and outcomes of patients undergoing diagnostic cardiac catheterization and percutaneous coronary intervention (PCI). Participating facilities can use registry data to assess adherence to clinical guidelines, performance standards, and appropriate-use criteria.
The LAAO Registry captures data on left atrial appendage occlusion procedures performed to reduce stroke risk in patients with non-valvular atrial fibrillation. It evaluates real-world procedural outcomes, safety, effectiveness, and quality of care and is approved to meet applicable CMS registry requirements for percutaneous LAA closure.
The STS/ACC TVT Registry monitors patient safety and real-world outcomes associated with transcatheter valve replacement and repair procedures. Registry data support quality improvement, benchmarking, research, and evaluation of outcomes for evolving transcatheter valve therapies.
GWTG - Cardiovascular
Get With The Guidelines–AFib supports quality improvement for patients with atrial fibrillation by helping hospitals monitor guideline adherence and patient outcomes. The program also includes monitoring of outpatient AFib ablation procedures and associated outcomes and complications.
Get With The Guidelines–CAD supports evidence-based care for patients with chest pain, acute coronary syndrome, and heart attack. Registry data help organizations evaluate performance, benchmark care, and identify opportunities for cardiovascular quality improvement.
Get With The Guidelines–Heart Failure helps hospitals improve the management and outcomes of patients with heart failure through evidence-based care and quality measurement. The registry provides real-time reporting, benchmarking, data validation, and tools to support performance improvement.
GWTG
Stroke
GWTG
Resuscitation
Cystic
Fibrosis
Get With The Guidelines–Stroke helps hospitals measure and improve stroke care using evidence-based guidelines, standardized data, and performance benchmarking. The registry also supports stroke quality improvement, certification requirements, and data-driven evaluation of patient care.
Get With The Guidelines–Resuscitation supports hospitals in improving the care and outcomes of patients experiencing in-hospital cardiac arrest. The program uses standardized data, reporting, and benchmarking to identify opportunities to strengthen resuscitation care and survival.
The Cystic Fibrosis Foundation Patient Registry collects health information from people with cystic fibrosis receiving care at participating CF Foundation-accredited care centers. Registry data help improve CF care, develop care guidelines, support quality improvement, study treatments and outcomes, and inform clinical research.
Surgical Registries
The ACS National Surgical Quality Improvement Program is a clinical, outcomes-based registry designed to help hospitals measure and improve surgical quality. It uses risk- and case-mix-adjusted clinical data and 30-day patient outcomes to identify complications, benchmark performance, and guide improvement initiatives.
ACS NSQIP Pediatric is a risk-adjusted, outcomes-based program designed specifically to measure and improve pediatric surgical care. Participating hospitals collect clinical data and compare outcomes with other participating organizations to identify opportunities for quality improvement.
MBSAQIP supports the safety and quality of metabolic and bariatric surgical care through standardized clinical data collection, accreditation, and quality improvement. Participating programs use outcomes data and benchmarking to evaluate performance and identify opportunities to improve bariatric patient care.
Cancer
Registry
Orthopedic
Infection
Prevention
The National Cancer Database is a nationwide clinical oncology database jointly operated by the American College of Surgeons Commission on Cancer and the American Cancer Society. Data submitted by Commission on Cancer-accredited programs are used to evaluate cancer care, identify trends, establish benchmarks, and support quality improvement.
The American Joint Replacement Registry (AJRR) collects hip and knee replacement data to support quality improvement, patient safety, benchmarking, and improved outcomes. The registry includes data from hospitals, ambulatory surgery centers, and private practices across the United States.
The CDC's National Healthcare Safety Network is a national surveillance system used to track healthcare-associated infections and other patient and healthcare personnel safety measures. NHSN data support infection prevention, benchmarking, quality improvement, and state and federal reporting requirements.
Trauma Registries
VQI
The Trauma Quality Improvement Program collects trauma center data and provides risk-adjusted benchmarking to help organizations evaluate performance and improve outcomes for injured patients. Participating centers use standardized data, education, and national comparisons to identify opportunities for trauma quality improvement.
NTDS establishes standardized definitions and data elements for trauma registry collection. It provides the common framework used for national trauma data submission and meaningful comparison of trauma care across organizations.
The Society for Vascular Surgery Vascular Quality Initiative collects clinical, procedural, and outcomes data across multiple vascular procedure registries. VQI data support risk assessment, benchmarking, quality improvement, outcomes analysis, research, and development of best practices in vascular care.
Rare
Diseases**
Clinical
Research**
Other
Registries
The NIH Rare Diseases Registry Program provides guidance, standards, and tools for developing and maintaining high-quality rare disease registries. RaDaR promotes standardized data practices and collaboration among patients, caregivers, clinicians, researchers, advocacy organizations, and industry to advance rare disease research.
**RaDaR itself does not collect or store patient data; it is a resource for creating and managing high-quality rare disease registries.
ClinicalTrials.gov is an online database maintained by the U.S. National Library of Medicine that provides information about clinical research studies conducted in the United States and around the world. It includes information about ongoing and completed clinical trials and observational studies, including study eligibility, interventions, locations, and available results.
**ClinicalTrials.gov isn't really a clinical quality registry in the same sense as the others. It's a clinical research study database.
Clinical data abstraction extends far beyond the registries listed in our directory. Hospitals, health systems, professional organizations, government agencies, research programs, and specialty groups maintain numerous additional registries focused on specific conditions, procedures, populations, and quality initiatives.
Don't see your registry?
The world of clinical registries is constantly growing. If you know of a registry that should be included in the QDAA Registry Directory, let us know!
State Specific
Registries
Registry and reporting requirements vary by state. Select a state below to access official state resources for clinical registries, reporting programs, data requirements, and available. guidance.Because state programs may be administered by different agencies, QDAA provides links to the most comprehensive official resource available for each state.